Wednesday, February 7, 2018

The Diagnosis

November 7, 2017
34 Years old

I'd been fighting what I thought was a cold for a couple of weeks and it seemed to be moving to my chest. It was so bad that when I lay down to sleep, I couldn't breathe. There was something in my lungs that was making things uncomfortable and I didn't like it! Stubborn as I can sometimes be known to be, I decided I didn't need (or want) to go to the doctor, I just needed cold medicine (i.e. a Hot Toddy) and some good, restful sleep so I propped myself up and kept grumpily fighting it until my husband finally convinced me that this wasn't going to go away on its own. So Tuesday evening, we went to Instacare, thinking they would give me some kind of steroid or something to get rid of the fluid in my lungs, and I'd go home to sleep.
I was wrong.
When we got there my blood pressure was through the roof (130/80 would be a good number...mine was somewhere closer to 200/90...). They did a chest x-ray and didn't find pneumonia, which is what I was expecting them to find...or anything else for that matter. They couldn't diagnose me. They suggested I go to the E.R. instead to get a full work up and find out why my blood pressure was so high...and you know, maybe do it before I have a heart attack or something...
So we went to the E.R.
They did their tests. Poked and prodded, x-rays and ultrasounds for what felt like forever. Then, around 2:00 or 3:00 in the morning they finally came in and gave me the news.
My kidneys are shutting down.
Now let me back track just a little here to let you know that when I was 8 years old I was diagnosed with type I diabetes. I'd been dependent on insulin for 26 years of my life at this point. I've had eye problems. I've had nerve damage in my feet. But the big scare for all diabetics is Renal Failure. And I was lying in the E.R. being told that is exactly what I have.
During my 4 day hospital stay I learned that my kidneys were working at about 20%. Dialysis and/or a transplant is an inevitability. It’s just a matter of when. Oh and all the food and beverage options that I so enjoy? They are a thing of the past. I learned that I'll have to limit my sodium intake, my potassium intake, and my phosphorus intake. I also learned that this is not something I'll ever get better from. This is a lifelong sentence. Dialysis can help, but it isn’t a cure. A transplant can help, but it’s not a cure. They are just treatments.

This sucks!

Back to Blogging???

A lot is going on in my life lately and my husband, Devon suggested that I start blogging again, to have an outlet so to speak....I feel like it might be a good idea. I doubt there is anybody that still even looks at this thing (if there is anyone, I imagine they have been sorely disappointed by the amount of posts in the past several years! ha ha) but I think it might be a good thing just for me. I have always enjoyed looking back on my old posts as a kind of journal and it does seem to help to get some of this shit that's bouncing around my head into type...somehow organizes it all or something for me so its more manageable, I think. So, I think I might attempt the blogging thing. Couple of warnings:

  • I tend to be a bit of a rambler...deal with it
  • No promises on how often this will or will not happen. Just something I'd like to try out for now.
  • I reserve the right to be or sound like a dumb ass on my blog...its MY blog so, again...deal with it! :)
I think that's all for now. Lets see how this goes....wish me luck!