It was from Amy who is part of the Transplant Team.
She said that as soon as she clicks the little button on her computer I will officially be added to the transplant list.
Then she clicked the little button.
I was just sitting at my desk at work.
And then I started bawling.
I hadn't realized how many hoops there are to jump through and the emotional roller coaster ride that comes with getting put on the transplant list! But here I am. On the list. I started the process of being added to the list back in February. And six months later, I'm on it. It is still kind of blowing my mind.
They said the wait for SPK (Simultaneous Pancreas-Kidney Transplantation) is usually anywhere from 6 months to 2 years, but I'm on the list now, so technically I could get a call any time and they could tell me that they have some organs for me. Wow!
Up until now, I hadn't posted anything on social media about any of this kidney stuff. Partly cause I didn't want to feel like I was being all "Hey guys, this is what's up with me, give me your pity now". But I thought this might be a good time to share the news with my Facebook world since it could be a positive and hopeful type of post, instead of a "please feel sorry for me" type of post and so I did. I think it's a pretty good post. I can't believe the outpouring of positive comments and support that I've gotten. It makes me really glad that I decided to share. I'm feeling pretty great!
This is what I wrote:
feeling hopeful.
Something huge happened today.
Some of you may know, but many don’t that about 8 months ago I was told that my kidneys are no longer working. I have End Stage Renal Disease. Since then I’ve (with the help of the BEST and most supportive group of people a girl could ever ask for) been fighting my little butt off to try and remain as healthy as possible. I started kidney dialysis a couple of months ago and have been jumping through lots, and lots of hoops to get myself on that damn transplant list.
That’s the huge thing that happened today. I just got a call from the transplant team that my name has officially been put on the list to receive a brand new (well, technically used…but new to me
😊) kidney and pancreas! I’M ON THE LIST!!
…let the waiting begin
#onestepcloser #iwillsurvivethis #fightlikehell
Some of you may know, but many don’t that about 8 months ago I was told that my kidneys are no longer working. I have End Stage Renal Disease. Since then I’ve (with the help of the BEST and most supportive group of people a girl could ever ask for) been fighting my little butt off to try and remain as healthy as possible. I started kidney dialysis a couple of months ago and have been jumping through lots, and lots of hoops to get myself on that damn transplant list.
That’s the huge thing that happened today. I just got a call from the transplant team that my name has officially been put on the list to receive a brand new (well, technically used…but new to me
😊) kidney and pancreas! I’M ON THE LIST!!…let the waiting begin
#onestepcloser #iwillsurvivethis #fightlikehell
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